Okay it's Friday --end of the week and my day is crammed with conferences and meetings. I started off this morning with a conference with Dr. Mark Kasten about my sister and her care at the Nursing Home. This went fine.
Then Annie and I went to Nursing Home and had a multi-staff conference with three of the employees there. My sister is doing well adapting (she was there before and did not do so well) but I have learned from every source that I consider knowledgeable on strokes that there is no prediction on previous patterns and sometimes even a light stroke will make a person do things and be things that they would never be or do. I will never let anyone say "light stroke" in front of me. There are no, and I repeat, no light strokes!!!!
Those who are around the patient need understanding. It is not easy to make decisions or to find ways to keep them occupied and their mind happy and busy. The care-givers, whether they do the work, or make the decisions, need people around them who say "thank you" and keep their critical opinions to a minimum. Neither has an easy job! How well I know! Those members of families who can walk away or don't have to make the hard decisions do not have it easy either but they have no idea what those with the staying power or the legal power are carrying!
I love going to the Nursing Home. They always tell me how lucky my sister is to have me and they always want to know how I am doing under the stress! That is so essential to my emotional well-being! Paths are chosen, sometimes, for us and sometimes we choose to walk in that path. But NO ONE knows what that path is like until they travel in it!
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